from: Cystic fibrosis: hope remains for a 'miracle cure'.
source: M2 Presswire, March 29, 2006.
via:
HighBeam™ Research
COPYRIGHT 2006 M2 Communications Ltd.
from: Cystic fibrosis diagnosis after age 40 on the rise.(Pulmonary Medicine) by Kirn, Timothy F.
source: Family Practice News, February 15, 2006.
via:
HighBeam™ Research
COPYRIGHT 2006 International Medical News Group
from: Randomized clinical trial of behavioral and nutrition treatment to improve energy intake and growth in toddlers and preschoolers with cystic fibrosis. by Acton, James D.
source: Pediatrics, December 1, 2005.
via:
HighBeam™ Research
COPYRIGHT 2005 American Academy of Pediatrics
Recommended Book
Heroes Among Us, August 9, 2003
I first heard Laura Rothenberg's story on NPR - as a student at Brown she recorded her daily life with Cystic Fibrosis - waking up each day trying to breathe - multiple treatments each day to rid her lungs of the thick mucus that clogged her airways. A typical story of this chronic terminal disease, but told in private, personal terms. Laura was a model for other students her age- she so wanted to live and to love. She went through a bilateral lung transplant but suffered from chronic then acute rejection. She was able to find romantic love with Brian and friendship with her many friends. Whomever Laura knew she touched their lives, and many of these people remember her in their stories in this book. Tragically Laura died at age 22- she was ready to die when the time came, and she helped prepare her loved ones for this loss. People with Cystic Fibrosis are my heroes- they live each day trying to breathe-every day of their lives.
To find out more information on this book, Breathing for a Living: A Memoir, and to purchase it, please click on the following links;
UK visitors.
Non UK visitors.